Archive for January, 2010
Brain Tumour Action Bookshop
January 17, 2010
Posted in: Uncategorized 
BTA Lobbying Subject List
BTA’s lobbying Alerts will cover the following subjects, agreed at a meeting of the Brain Tumour Research umbrella group in November 2009:
- More Neuro-oncology Staff at hospitals nationwide
- Continuity of Care from diagnosis onwards
- Post Treatment care improved and expanded nationwide
- More funding for training specialist doctors nationwide
- Regional centres – more research centres across the UK
- GP – assistance with early diagnosis of tumours
- Opticians – assistance with early diagnosis of tumours
- Research funding – MRC/government money hugely increased
- More scanners in hospitals and medical centres nationwide
- Access to new drugs at the earliest possible moment
- Proton therapy : not available in UK/how, when & where/postcode lottery/impact on research funding
- Standard of care across all disciplines not consistent:Â treatment/ after care
- IOG (Improving Outcomes Guidance) – implementation
Back to Online Lobbying Resources Page
January 4, 2010
Posted in: Uncategorized
Brain Tumour Action Lobbying Guidelines
Please adhere to these guidelines when using our online lobbying facilities.
- Only use BTA’s online lobbying facilities for the purpose of contacting your own local politicians, and only use them for BTA-led lobbying and for no other purpose.
- “Your own local politicians” refers to those politicians elected to serve the area in which your home address falls. Please do not use our facilities to contact politicians elected to serve the area in which your work address falls.
- Please use your own words when contacting a politician using our online facilities. We can provide guidelines for you on a particular topic, but if you express them in words of your own choosing the impact is much the greater.
- Courtesy is essential when addressing politicians. A calm and professional approach is core to our public image and to our success.
- Please do not “over-lobby.” Multiple messages on the same subject from the same person only lose impact for others. Single messages from many different people obtain the greatest impact. At most, contact any given politician no more than once per month, unless the politician has expressly invited correspondence.
- For the most part, please stick to responding to BTA Lobbying Alerts, and respond to them within the date specified in the alert.
Thank you for reading these guidelines, and thank you above all for the crucial part you are playing in creating the political conditions for change for patients with brain tumours!
Back to BTA Lobbying Resources Page
January 4, 2010
Posted in: Uncategorized
