Links
Charities associated with brain tumours: support, information and research.
http://www.braintumourresearch.org/ Brain Tumour Research
http://alisdream.f2s.com/ Ali’s Dream
http://www.andreasgift.org.uk/ Andrea’s Gift
http://www.annashope.co.uk/ Anna’s Hope
http://www.brainandspine.org.uk/ The Brain and Spine Foundation
http://www.wayahead-btrc.org/ Brain Tumour Research Campaign
http://www.brainstrust.org.uk/ Brainstrust – The Meg Jones Brain Cancer Charity
http://www.brainwaves-ni.org/ Brainwaves – Northern Ireland Brain Cancer Charity
http://www.cbtrc.org/ The Childrens’ Brain Tumour Research Centre
http://www.elliestrust.org/ Ellie’s Trust
http://www.hammerout.co.uk/ Hammer Out
http://www.levisstar.co.uk/ Levi’s Star
http://www.btbuddies.org.uk/ BTBuddies
http://www.libertyrosetrust.org/ The Liberty Rose Trust
http://www.braintumouruk.org.uk/ Brain Tumour UK
http://www.cccrf.co.uk/ Christopher Clarke Cancer Research Fund
http://www.andrewmccartneyphotos.co.uk/ The Andrew McCartney Trust Fund for Brain Tumour Research
http://www.braintumourukeast.co.uk/ The Eastern Counties Arm of Brain Tumour UK
http://www.meningiomauk.org/ Meningioma UK
http://poppyfieldsappeal.co.uk/index.asp Poppy Fields Charity
http://www.jamieswish.co.uk/ Jamie’s Wish
http://www.pcmt.org/ The Peter Culverhouse Memorial Trust
http://afrt.org.uk/afrt/index.htm Alison Fracella Research Trust
http://www.edevansfoundation.co.uk/index.html The Ed Evans Foundation
International information and campaigning organisations
http://www.virtualtrials.com/ Virtual Trials – Information about clinical trials worldwide
http://www.theibta.org/ The International Brain Tumour Association
http://www.abta.org/ The American Brain Tumour Association
http://www.braintumor.org/GeneralMenu/ The National Brain Tumor Society (USA)
http://www.brainlife.org/index.htm BrainLife – current neuro-oncology
United States charities and foundations
http://www.tugmcgraw.org/home.asp The Tug McGraw Foundation
http://www.thekortneyrosefoundation.org/ The Kortney Rose Foundation
http://www.charleswarrenfoundation.org/ The Charles Warren Foundation
http://www.tbkf.org/index01.htm The Brad Kaminsky Foundation
http://www.hopewithsupport.org/ Hope With Support
http://www.ssbtr.org/index.php?action=gid_1 Students Supporting Brain Tumor Research
http://www.brain-treatments.net/ Brain Tumor Treatments
http://home.earthlink.net/~sdepesa/ Living With a Malignant Brain Tumor – a Patient’s Guide
General cancer assistance, support and information
http://essentialaids.com/ Essential Aids: The UK’s Online Shop for Living Aids and Accessories
http://www.chill4us.com/news/index.php Chll4us – online forum for carers from all backgrounds
http://www.neurosupport.org.uk/ The superb Neurosupport Centre in Liverpool
http://www.winstonswish.org.uk/ Winston’s Wish – the charity for bereaved children
http://www.maggiescentres.org/maggies/maggiescentres/home/home.html Maggie’s Centres – magnificent, award-winning drop-in centres for cancer patients of all kinds, ages and backgrounds. Essential.
http://www.cafamily.org.uk/index.php?section=861 Contact A Family: for families with disabled children
http://www.riprap.org.uk/ Riprap – a website for children of parents with cancer
http://www.yct.org.uk/home.aspx The Youth Cancer Trust – free holidays for cancer patients aged 14-30
http://www.carersandbraintumours.org/ Carers and Brain Tumours – magnificent support and advice for carers in particular
http://www.macmillan.org.uk/Home.aspx Macmillan Cancer Support
http://www.cancerbuddiesnetwork.org/ The Cancer Buddies Network – contact and share with people going through the same experiences
http://www.anac.org.uk/ New Approaches to Cancer – holistic approaches
http://www.neurosupport.org.uk/working.html The Working Life Service – staying in work after your diagnosis
http://www.neural.org.uk/ The Neurological Alliance
http://www.teenagecancertrust.org/ The Teenage Cancer Trust
http://www.click4tic.org.uk/Home Teen Info on Cancer
http://www.rarercancers.org.uk/ The Rarer Cancers Forum
http://www.cherylbroyles-gbm.com/ Life’s Mountains by Cheryl Broyles
http://www.beatson.scot.nhs.uk/content/default.asp?page=s17 The Beatson West of Scotland Cancer Centre, Glasgow
http://www.basiccharity.org.uk/ Brain and Spinal Injury Centre
http://www.neurooncology.scot.nhs.uk/ SANON – the Scottish Adult Neuro-Oncology Network
February 13, 2010
Posted in: Links 
Useful Links
This page contains a list of organisations with web pages which might be helpful to brain tumour patients and their carers. The links have been organised into groups according to their type and relevance. These links take you to external web sites, so please use the ‘back’ button to return to the BTA web site.
Brain Tumour Information & Support
- BTUK Yahoo Group
- Scottish Adult Neuro-Oncology Network
- American Brain Tumor Association
- Cancerlinks
- Brain Tumour.net
- Brain Tumour UK
- Contact a Family
- The Samantha Dickson Brain Tumour Trust
- Brain Tumour Information from the BBC
- American Institute for Cancer Research
- United Brain Tumour Campaign
- CLAN
- British Acoustic Neuroma Association (BANA)
Have been in existence for 13 years helping people affected by acoustic neuroma - Astro Fund The mission of Astro Fund is to provide a focus for the worldwide low-grade brain tumour community by offering a source of information, inspiration, connections and hope.
- IBTA The International Brain Tumour Association
Paediatric Brain Tumours Information & Support
- Now What? – a site for children whose parents or siblings have cancer.
- CLIC Sargent - Caring for Children with Cancer
- Brain Tumours and Children
This is BTA’s services for the families of children who have been diagnosed with a brain tumour. - Ali’s Dream
- Children’s Brain Tumour Research Centre – East Midlands
- Desmoplastic Infantile Ganglioglioma
- Ellie Savage Memorial Trust – East Anglia
- Pediatric Brain Tumor Foundation of the United States
General Cancer Sites
- University of Pennsylvania Cancer Centre
- Kimmel Cancer Centre
- Cancer Education
- American Association for Cancer Research
- Cancer BACUP
- Cancer Research UK
- Maggie’s Cancer Caring Centres aim to help people to adjust to living with cancer. They are open to anyone, whether they are diagnosed with cancer, or a family member, friend or carer: www.maggiescentres.org
Other Charities & Support Services
- Peter Culverhouse Memorial Trust
- Andrea’s Fund – Yorkshire
- Brain Tumour Research Campaign – London
- Brainwaves – Northern Ireland
- Hammer Out – Bristol
- Jessie’s Fund
- Net Doctor
- Patient UK
- Specialist Consultants – UK
- Health education Board for Scotland
- NHS 24 (Scotland)
- NHS Direct On-Line (England & Wales)
- able2travel – provides a caring and sensitive travel insurance solution for all travellers, including those with a medical condition.
- British Association for Counselling and Psychotherapy
Clinical Trials
July 23, 2009
Posted in: Links
