conTAK Scotland has opened its Drop-In Centre – the first of its kind – in the centre of Glasgow! For all young adults living with cancer, family and friends, the drop in centre offers support and friendship, regular get-togethers and the chance to meet a great bunch of folk who really do ‘know how you feelâ.
You’ll find us at Suite 320, 4th Floor, Central Chambers, 11 Bothwell Street, GLASGOW G2 or you can give us a call first on 0141 227 6764, or email email@example.com
The Royal College of Nursing would like to invite you to attend a short focus group to share your views and opinions about the care you have received from clinical nurse specialists or nurse consultants (and also to share your ideas about the best ways of assessing or measuring nurse performance).
The College is keen to obtain the views of patients whose experiences fit the following three simple criteria:
- They have accessed specialist or advanced nursing care.
- They have done so within the last twelve months.
- In any of the following 21 health-related issues or disease-specific treatments:
Asthma; Hospice Services; Cancer; Leg Ulcer Services; Continence Care; Palliative Care Services; Dementia; Rehabilitation Services; Dermatology; Respiratory Diseases; Diabetes; Rheumatology; District Nursing Team; Sexual health Services; Family Planning Services; Stroke; Gastroenterology; Tissue Viability Services; General practice; Urology; Heart Disease.
The focus group will take place in:
- London (address to be shortly confirmed).
- March 2011 (date to be confirmed)
- And will last no longer than 2 hours.
If you would like to attend you should contact Mehreen Chandan at the Royal College of Nursing.
“The Herald” calendar supports BTA
The Duffy family were helped by Brain Tumour Action and The Herald has most generously decided to support us from the sales of their 2012 charity calendar.
Profits from the sales ofÂ the calendar, which showcases the best of Herald readers’ pictures, will go to Brain Tumour Action.
For Caleb and his parents to support us like this is a wonderful gesture. It is a way of helping more people become aware of the problems facing children with brain tumours. There is a desperate lack of research and available funding.
The calendar is on sale now for ÂŁ7.50 (inc p&p). Order on-line at http://login.heraldscotland.com/heraldcalendar/order.cgi or by phone (0141 302 7300) or by visiting The Herald offices at 200 Renfield Stret, Glasgow G2 3QB.
Nicola Mc.Laughlin presenting her cheque to BrainTumour Action at their Committee Meeting on October 11th. Well done, Nicola for raising over ÂŁ4000 and thank you for coming over from Fife to present it in person.
Many, many thanks to all our committed fundraisers including Jane Murray, whose Pamper Night was such a magnificent success, and to Neil Boyle who had an impressive number of sponsors when he recently took part in Pedal for Scotland.
Do you search the Web? Did you know you could be raising funds for Brain Tumour Action with easysearch, a search engine with a difference!
When you search the Web with easysearch instead of Google or any other search engine, you’ll raise funds for us with every search you make. It’s completely free to use and if you make just 10 searches a day, you could raise around ÂŁ20 a year for us, just by searching with easysearch. That’s right! Simply search the Web and raise funds – what could be easier?
What’s more, easysearch is a ’super’ search engine that combines the strengths of several search providers together – Yahoo!, Ask.com, Bing and many more. This unique approach to searching means that easysearch can track down the most relevant and accurate results from across the Web, so you’ll find what you’re looking for quickly and easily every time – all in one ‘easy’ search.
It is such a simple way to raise funds for us so please set our unique easysearch page – http://bta.easysearch.org.uk – as your homepage and use it every time you search the Web. Please spread the word to your family and friends and ask them to support us too.
Or just use the search box in the right-hand sidebar every time you visit our site.
Easyfundraising is a shopping directory listing some of your favourite online stores, including Argos, Next, Amazon, Debenhams, John Lewis, Toys R Us, HMV and over 2000 other top name stores. Whenever you shop with any one of them using the links provided on the Easyfundraising site, you’ll generate a free donation for us of up to 15% of the purchase price every time! It really is that simple!
It’s completely FREE to register and you won’t pay a penny more for your shopping when you use the easyfundraising site. In fact you can even SAVE MONEY as many retailers give discounts, special offers and even ‘e-vouchers’ exclusive to Easyfundraising.
You can shop for holidays, flights, electronics, mobile phones, computing equipment, food, wine, pet supplies, finance, insurance and much more – and every purchase you make will raise funds for us at absolutely no cost to you!
All you need to do is register for free at http://www.easyfundraising.org.uk/bta and use easyfundraising every time you shop online.
Josie Phillips with her husband Roger are sailing their Contessa32, Nordlys , around Britain to raise funds and awareness for Brain Tumour charities and to complete a great personal challenge.
Josie was diagnosed with a low grade brain tumour in 2004 but in 2008 after three operations they discovered it had progressed to grade 4 (malignant). Since then Josie has been treated with radiotherapy and chemotherapy as well as developing an infection which led to yet another operation and she is now without a section of skull.
The length of Josie’s life is rather uncertain but one thing is for sure – She is determined to live it and enjoy it.
In 2007, Brain tumours killed 3611 people, many of whom were children, or young adults like Josie. When compared with other cancers such as leukaemia and breast cancer, funds for brain tumour research are seriously lacking. In the UK more children and people under the age of 40 die of a brain tumour than any other cancer â yet brain tumour research is woefully under-funded.
Very little is known about the cause of primary brain tumours and there is no cure. More funding is needed to enable research to help find better treatments for this horrible disease.
Average survival for people with brain cancer like Jose’s is between just 9 months and 2 years.
With a passion for living made stronger with each challenge and adventure, Josie intends to beat the statistics and keep living.
In her own words âSailing Round Britain is a great personal challenge for me and will never take me far from medical help should I need it. It will also give us the opportunity to see lots of our friends along the way and hopefully make new ones too!â
You can learn more Josie and Roger and follow them round the UK at www.contessa32.co.uk.
On April 29th. Brain Tumour Action funded a well-attended Training Day in association with the Scottish Adult Neuro-Oncology Network (SANON) and the Edinburgh Centre for Neuro-oncology. The event, a masterclass for nurses, was held at The Western General Hospital and was attended by more than sixty nurses from all over the UK representing a wide range of disciplines.
After a brief introduction from BTA there were talks on a range of subjects including âDistress and Depression in Glioma Patientsâ by Dr. Alasdair Rooney and âManaging Seizuresâ by Yvonne Leavy. Dr. Julie Read talked about the problems of diagnosis and recognition of symptoms which, because she was speaking both as GP and Carer, gave her observations an extra authority. Prof. Ian Whittle discussed different surgical interventions and Dr. Zoe Morris gave a detailed analysis of neuro-oncology imaging. Andrew Anderson from the Maggieâs Centre illustrated âDifficult Situations and Questionsâ while Dr. Simon Kerrigan considered cognition in patients with brain tumours.
It is hoped that this worthwhile event can be repeated in other parts of the UK since this is a disease that requires expert knowledge at all levels, from diagnosis to treatment and care. Brain Tumour Action is delighted to be able to assist in this practical way.
A 22 year old man died of dehydration after three days in one of the UK’s top teaching hospitals. In desperation he even rang the police for help.
Kane Gorny was diagnosed with a brain tumour last year and was admitted to St. George’s Hospital for further treatment when the drugs he had to take weakened his hip bone.
Two days after the hip operation, having been denied essential medication, he became severely dehydrated but his requests for water were refused. Bedridden and confused, he still managed to ring the police for help.
Very sadly it was too late. His mother said: “I told three nurses there was something wrong with my son and they said “he’s fine” and walked off.”
Kane died shortly afterwards.
St. George’s Hospital has apologised and says it has introduced new procedures to ensure such a failure can not happen again.
However the MetropolitanPolice have been requested to investiage his death after the case was referred by Westminster Coroner’s Court.
Taken from Mail Online – The Daily Mail, March,2010.