Travel Insurance
Columbus Travel Insurance offers travel insurance to brain tumour patients. Do of course shop around and let us know what other companies you may find.
It would be good to have a list of options here.
August 25, 2010
Posted in: Uncategorized 
Preston Support Group
A support group for brain tumour patients, carers and families in the Preston area.
The first meeting will be held on the 6th of September, 6-8pm.
Contact Donna Sherridan on 01772 793344 or 07508375679 for further meeting times.
The group meets in Vine House, 22 Cromwell Road, Ribbleton, Preston, PR2 6YB
August 23, 2010
Posted in: Uncategorized
Josies’s Sail Around the UK
July, 2010
- Josie welcomed in Oban by Mike from BTA
Josie Phillips with her husband Roger are sailing their Contessa32, Nordlys , around Britain to raise funds and awareness for Brain Tumour charities and to complete a great personal challenge.
Josie was diagnosed with a low grade brain tumour in 2004 but in 2008 after three operations they discovered it had progressed to grade 4 (malignant). Since then Josie has been treated with radiotherapy and chemotherapy as well as developing an infection which led to yet another operation and she is now without a section of skull.
The length of Josie’s life is rather uncertain but one thing is for sure – She is determined to live it and enjoy it.
In 2007, Brain tumours killed 3611 people, many of whom were children, or young adults like Josie. When compared with other cancers such as leukaemia and breast cancer, funds for brain tumour research are seriously lacking. In the UK more children and people under the age of 40 die of a brain tumour than any other cancer â yet brain tumour research is woefully under-funded.
Very little is known about the cause of primary brain tumours and there is no cure. More funding is needed to enable research to help find better treatments for this horrible disease.
Average survival for people with brain cancer like Jose’s is between just 9 months and 2 years.
With a passion for living made stronger with each challenge and adventure, Josie intends to beat the statistics and keep living.
In her own words âSailing Round Britain is a great personal challenge for me and will never take me far from medical help should I need it. It will also give us the opportunity to see lots of our friends along the way and hopefully make new ones too!â
You can learn more Josie and Roger and follow them round the UK at www.contessa32.co.uk.
- Safely Arrived in Eyemouth.
August 22, 2010
Posted in: News from BTA, Uncategorized
Haverfordwest Support Group
The Thorne Mason Trust currently runs a monthly cancer support session in on the first Thursday of every month at Crundale Community centre, near Haverfordwest from 10am – 1pm. Anyone who is affected by cancer is welcome at these sessions including family, friends and carers.
May 30, 2010
Posted in: Uncategorized
Nurses Training Day
On April 29th. Brain Tumour Action funded a well-attended Training Day in association with the Scottish Association for Neuro-oncology Nurses (SANON) and the Edinburgh Centre for Neuro-oncology. The event, a masterclass for nurses, was held at The Western General Hospital and was attended by more than sixty nurses from all over the UK representing a wide range of disciplines.
After a brief introduction from BTA there were talks on a range of subjects including âDistress and Depression in Glioma Patientsâ by Dr. Alasdair Rooney and âManaging Seizuresâ by Yvonne Leavy. Dr. Julie Read talked about the problems of diagnosis and recognition of symptoms which, because she was speaking both as GP and Carer, gave her observations an extra authority. Prof. Ian Whittle discussed different surgical interventions and Dr. Zoe Morris gave a detailed analysis of neuro-oncology imaging. Andrew Anderson from the Maggieâs Centre illustrated âDifficult Situations and Questionsâ while Dr. Simon Kerrigan considered cognition in patients with brain tumours.
It is hoped that this worthwhile event can be repeated in other parts of the UK since this is a disease that requires expert knowledge at all levels, from diagnosis to treatment and care. Brain Tumour Action is delighted to be able to assist in this practical way.
May 5, 2010
Posted in: News from BTA, Uncategorized
Golf Day
April 2011
Coffee and bacon roll
18 Holes Shotgun Start
2 course meal
Prizes and raffle
ÂŁ300 per team of 4 players
For an application form please call
0131 466-3116 and leave your name and address.
OR CLICK HERE TO DOWNLOAD A FORM FROM THIS WEBSITE
March 29, 2010
Posted in: Uncategorized
KITE Newsletters
KITE – âKeeping In Touch with Everyoneâ â is our quarterly newsletter. Itâs a great way to keep up with all of BTAâs latest activities, new research, issues surrounding brain tumours, real life stories and fundraising efforts.
You can download the latest issues from this page. Just click on the images to obtain your copy. The downloadable issues require Adobe Acrobat Reader or Foxit Reader on your computer to open them.
KITE March 2010
KITE October 2009
KITE June 2009
March 24, 2010
Tags: KITE Posted in: KITE Newsletter, Uncategorized
Brain Tumour Action Bookshop
January 17, 2010
Posted in: Uncategorized
BTA Lobbying Subject List
BTA’s lobbying Alerts will cover the following subjects, agreed at a meeting of the Brain Tumour Research umbrella group in November 2009:
- More Neuro-oncology Staff at hospitals nationwide
- Continuity of Care from diagnosis onwards
- Post Treatment care improved and expanded nationwide
- More funding for training specialist doctors nationwide
- Regional centres â more research centres across the UK
- GP â assistance with early diagnosis of tumours
- Opticians â assistance with early diagnosis of tumours
- Research funding â MRC/government money hugely increased
- More scanners in hospitals and medical centres nationwide
- Access to new drugs at the earliest possible moment
- Proton therapy : not available in UK/how, when & where/postcode lottery/impact on research funding
- Standard of care across all disciplines not consistent:Â treatment/ after care
- IOG (Improving Outcomes Guidance) – implementation
Back to Online Lobbying Resources Page
January 4, 2010
Posted in: Uncategorized
Brain Tumour Action Lobbying Guidelines
Please adhere to these guidelines when using our online lobbying facilities.
- Only use BTA’s online lobbying facilities for the purpose of contacting your own local politicians, and only use them for BTA-led lobbying and for no other purpose.
- “Your own local politicians” refers to those politicians elected to serve the area in which your home address falls. Please do not use our facilities to contact politicians elected to serve the area in which your work address falls.
- Please use your own words when contacting a politician using our online facilities. We can provide guidelines for you on a particular topic, but if you express them in words of your own choosing the impact is much the greater.
- Courtesy is essential when addressing politicians. A calm and professional approach is core to our public image and to our success.
- Please do not “over-lobby.” Multiple messages on the same subject from the same person only lose impact for others. Single messages from many different people obtain the greatest impact. At most, contact any given politician no more than once per month, unless the politician has expressly invited correspondence.
- For the most part, please stick to responding to BTA Lobbying Alerts, and respond to them within the date specified in the alert.
Thank you for reading these guidelines, and thank you above all for the crucial part you are playing in creating the political conditions for change for patients with brain tumours!
Back to BTA Lobbying Resources Page
January 4, 2010
Posted in: Uncategorized