Rent A Date For Charity
Brain Tumour Action supports the initiative of Lisa Connel who, after her own diagnosis, started “Rent A Date For Charity” to raise Ā£1 million for brain tumour charities, including Brain Tumour Action. The charity with the assistance of “Guardian Angel Events” runs auctions for dates with celebrities and for opportunities to meet stars behind the scenes.
Visit Rent a Date for Charity to find ut about current auctions.
November 11, 2010
Posted in: Uncategorized 
Online Supporters’ Centre
BTA Online Supporters use their email and internet connection to raise funds, lobby for our cause and spread awareness. You can become a BTA Online Supporter from anywhere in the world ā anywhere the internet can reach. Use some or all of the following resources and make a real difference.
Fund BTA For Free From Your Computer
In conjunction with our colleagues at Easyfundraising, we have set up two different facilities for our Online Supporters to use.
Every time you search the internet using our search box in the right-hand sidebar of our site, or by visiting http://bta.easysearch.org.uk/, Easyfundraising will make a cash donation to BTA. If you are part of a company that uses the internet extensively, and can persuade the entire company to search via BTA’s Easysearch page, then those donations can mount up into a considerable sum which will help patients with brain tumours and pay for research.
Every time you shop online at our online shopping outlet run in conjunction with Easyfundraising, BTA receives part of the price you pay for your goods as a donation from the retailer. Most of the major online retailers are available via http://www.easyfundraising.org.uk/bta including Amazon, Boots, Boden and your other regular favourites.
Spread the BTA Message to Your Friends and Colleagues
Include BTA’s website address – www.braintumouraction.org.uk and the message – "Brain Tumour Action – Supporting Patients, Funding Research" in your email signature. This way, you alert recipients of your emails to our work, and allow them to find out more – in their own time and without imposing upon them.
Lobby Your Local Councillors, MP, MSP and MEP
Political representatives pay attention to their constituents’ concerns. BTA’s goal in 2009-2010 is to put the case for research and funding into brain tumours in front of every local councillor, every parliament member at Westminster and Holyrood, every Assembly member in Wales and every UK member of the European Parliament. To do that, we need Online Supporters in every part of the UK.
Sign up as an Online Supporter using the form below, and you’ll receive our periodic Alerts by email, which will tell you step by step how to go about effectively lobbying for our cause. You can lobby your political representatives online for free from our Lobbying Resources Page here – please use these resources only in accordance with our alerts and our guidelines. Sometimes an Alert will request contact with someone or some organisation other than one of your local politicians. If you sign up for our Alerts, you are not obliged to take part in any or every Alert.
November 10, 2010
Posted in: Uncategorized
Volunteer Recruitment Page
When Brain Tumour Action has vacancies for volunteers with specialist skills, knowledge or experience (e.g. technical, IT, legal, financial) details will appear here, on Volunteer Scotland, and/orĀ on the website of the Edinburgh Volunteer Bureau.
Please note that any volunteer role involving contact with vulnerable people will require high level disclosure but that this will be done at no cost to the potential volunteer. Most BTA volunteer applications will involve interview and references. BTA is grateful for all interest but cannot guarantee voluntary work to all applicants.
Brain Tumour Action is actively seeking a volunteer to assist with web design and web page management. Please get in touch if you can volunteer this kind ofĀ help.
November 10, 2010
Posted in: Uncategorized
Donate
Without your donations, Brain Tumour Action would be unable to continue its work supporting patients, carers, families and researchers.
Brain Tumour Action is a charity, and therefore not funded by any other organisation. We rely entirely upon the generosity of our supporters to:
- Maintain Support Groups up and down the country
- Establish new Support Groups where they are needed
- Fund research into brain tumours and their treatments
- Raise awareness about brain tumours
- Attend conferences and events to work with other organisations to improve policies and raise awareness
- Operate a support phone line for individual counselling and information
- Print our information leaflets and send them to those in need
ā¦.and much moreā¦..
You Can Help!
The easiest way to donate is through the website āJust Givingā which helpfully does all the work for you ā and us! Just Giving can also add Gift Aid to your donation, and is entirely safe and secure.
If you would prefer to donate using the good old-fashioned method of a cheque, we would be delighted if you could send it, made out to Brain Tumour Action, to 25 Ann Street, Edinburgh, EH4 1PL.
To add Gift Aid to your donation, and to any future donations, please click here.
Thank you so much in advance for your donation, you really can make a difference to someone elseās life, and we are so grateful for your contribution.
November 10, 2010
Posted in: Uncategorized
BTA Advocates’ Centre
One of the most important things you can do is spread the message about brain tumours in your own area. Our BTA Advocates are volunteers who focus on doing just that.
The core role of a BTA Advocate is to help raise public awareness of brain tumours to the same level as breast cancer, lung cancer and cervical cancer. Too many people take too long to be diagnosed because the warning signs aren’t well known. Too many people suffer unnecessarily because brain tumours aren’t properly understood in the public arena. This must end.
To help bring this change about, BTA Advocates:
- distribute leaflets, newletters and flyers in their area to doctors’ surgeries, hospitals, libraries, cafes, coffee shops etc.
- display posters in their window, in their local shops etc.
- talk to the people they know about brain tumours
- write to their local representatives to support research into brain tumours and to support their local facilities for patients with brain tumours
- hold occasional small fundraisers for BTA – e.g. garage sales, coffee mornings
- write to their local press about local issues arising from local peoples’ experiences of brain tumours
You can be a BTA Advocate anywhere in the UK. The amount of time you spend on BTA Advocate activities and the depth of your involvement is up to you. You’ll be a vital part of one of the most important health and information campaigns of our time.
Could you be a BTA Advocate? Sign up, using the form below!
November 10, 2010
Posted in: Uncategorized
Travel Insurance
Columbus Travel Insurance offers travel insurance to brain tumour patients. Do of course shop around and let usĀ know what other companies you may find.
It would be good to have a list of options here.
August 25, 2010
Posted in: Uncategorized
Preston Support Group
A support group for brain tumour patients, carers and families in the Preston area.
The first meeting will be held on the 6th of September, 6-8pm.
Contact Donna Sherridan on 01772 793344 or 07508375679 for further meeting times.
The group meets in Vine House, 22 Cromwell Road, Ribbleton, Preston, PR2 6YB
August 23, 2010
Posted in: Uncategorized
Josies’s Sail Around the UK
July, 2010
- Josie welcomed in Oban by Mike from BTA
Josie Phillips with her husband Roger are sailing their Contessa32, Nordlys , around Britain to raise funds and awareness for Brain Tumour charities and to complete a great personal challenge.
Josie was diagnosed with a low grade brain tumour in 2004 but in 2008 after three operations they discovered it had progressed to grade 4 (malignant). Since then Josie has been treated with radiotherapy and chemotherapy as well as developing an infection which led to yet another operation and she is now without a section of skull.
The length of Josie’s life is rather uncertain but one thing is for sure – She is determined to live it and enjoy it.
In 2007, Brain tumours killed 3611 people, many of whom were children, or young adults like Josie. When compared with other cancers such as leukaemia and breast cancer, funds for brain tumour research are seriously lacking. In the UK more children and people under the age of 40 die of a brain tumour than any other cancer ā yet brain tumour research is woefully under-funded.
Very little is known about the cause of primary brain tumours and there is no cure. More funding is needed to enable research to help find better treatments for this horrible disease.
Average survival for people with brain cancer like Jose’s is between just 9 months and 2 years.
With a passion for living made stronger with each challenge and adventure, Josie intends to beat the statistics and keep living.
In her own words āSailing Round Britain is a great personal challenge for me and will never take me far from medical help should I need it. It will also give us the opportunity to see lots of our friends along the way and hopefully make new ones too!ā
You can learn more Josie and Roger and follow them round the UK at www.contessa32.co.uk.
- Safely Arrived in Eyemouth.
August 22, 2010
Posted in: News from BTA, Uncategorized
Haverfordwest Support Group
The Thorne Mason Trust currently runs a monthly cancer support session in on the first Thursday of every month at Crundale Community centre, near Haverfordwest from 10am – 1pm. Anyone who is affected by cancer is welcome at these sessions including family, friends and carers.
May 30, 2010
Posted in: Uncategorized
Nurses Training Day
On April 29th. Brain Tumour Action funded a well-attended Training Day in association with the Scottish Adult Neuro-Oncology Network (SANON) and the Edinburgh Centre for Neuro-oncology. The event, a masterclass for nurses, was held at The Western General Hospital and was attended by more than sixty nurses from all over the UK representing a wide range of disciplines.
After a brief introduction from BTA there were talks on a range of subjects including āDistress and Depression in Glioma Patientsā by Dr. Alasdair Rooney and āManaging Seizuresā by Yvonne Leavy. Dr. Julie Read talked about the problems of diagnosis and recognition of symptoms which, because she was speaking both as GP and Carer, gave her observations an extra authority. Prof. Ian Whittle discussed different surgical interventions and Dr. Zoe Morris gave a detailed analysis of neuro-oncology imaging. Andrew Anderson from the Maggieās Centre illustrated āDifficult Situations and Questionsā while Dr. Simon Kerrigan considered cognition in patients with brain tumours.
It is hoped that this worthwhile event can be repeated in other parts of the UK since this is a disease that requires expert knowledge at all levels, from diagnosis to treatment and care. Brain Tumour Action is delighted to be able to assist in this practical way.
May 5, 2010
Posted in: News from BTA, Uncategorized
