Haverfordwest Support Group

The Thorne Mason Trust currently runs a monthly cancer support session in on the first Thursday of every month at Crundale Community centre, near Haverfordwest from 10am – 1pm. Anyone who is affected by cancer is welcome at these sessions including family, friends and carers.

May 30, 2010   Posted in: Uncategorized  

Nurses Training Day

On April 29th. Brain Tumour Action funded a well-attended Training Day in association with the Scottish Adult Neuro-Oncology Network (SANON) and the Edinburgh Centre for Neuro-oncology. The event, a masterclass for nurses, was held at The Western General Hospital and was attended by more than sixty nurses from all over the UK representing a wide range of disciplines.

After a brief introduction from BTA there were talks on a range of subjects including ‘Distress and Depression in Glioma Patients’ by Dr. Alasdair Rooney and ‘Managing Seizures’ by Yvonne Leavy. Dr. Julie Read talked about the problems of diagnosis and recognition of symptoms which, because she was speaking both as GP and Carer, gave her observations an extra authority. Prof. Ian Whittle discussed different surgical interventions and Dr. Zoe Morris gave a detailed analysis of neuro-oncology imaging. Andrew Anderson from the Maggie’s Centre illustrated “Difficult Situations and Questions” while Dr. Simon Kerrigan considered cognition in patients with brain tumours.

It is hoped that this worthwhile event can be repeated in other parts of the UK since this is a disease that requires expert knowledge at all levels, from diagnosis to treatment and care. Brain Tumour Action is delighted to be able to assist in this practical way.

May 5, 2010   Posted in: News from BTA, Uncategorized  

KITE Newsletters

KITE – “Keeping In Touch with Everyone” – is our quarterly newsletter. It’s a great way to keep up with all of BTA’s latest activities, new research, issues surrounding brain tumours, real life stories and fundraising efforts.

You can download the latest issues from this page. Just click on the images to obtain your copy. The downloadable issues require Adobe Acrobat Reader or Foxit Reader on your computer to open them.

KITE Winter 2011

Kite Nov 2011

KITE Winter 2010

KiteNov

KITE March 2010

KiteOct

KITE October 2009

KiteOct

KITE June 2009

KiteJune

March 24, 2010  Tags:   Posted in: KITE Newsletter, Uncategorized  

Brain Tumour Action Bookshop

January 17, 2010   Posted in: Uncategorized  

BTA Lobbying Subject List

BTA’s lobbying Alerts will cover the following subjects, agreed at a meeting of the Brain Tumour Research umbrella group in November 2009:

  • More Neuro-oncology Staff at hospitals nationwide
  • Continuity of Care from diagnosis onwards
  • Post Treatment care improved and expanded nationwide
  • More funding for training specialist doctors nationwide
  • Regional centres – more research centres across the UK
  • GP – assistance with early diagnosis of tumours
  • Opticians – assistance with early diagnosis of tumours
  • Research funding – MRC/government money hugely increased
  • More scanners in hospitals and medical centres nationwide
  • Access to new drugs at the earliest possible moment
  • Proton therapy : not available in UK/how, when & where/postcode lottery/impact on research funding
  • Standard of care across all disciplines not consistent:  treatment/ after care
  • IOG (Improving Outcomes Guidance) – implementation

Back to Online Lobbying Resources Page

January 4, 2010   Posted in: Uncategorized  

Brain Tumour Action Lobbying Guidelines

Please adhere to these guidelines when using our online lobbying facilities.

  1. Only use BTA’s online lobbying facilities for the purpose of contacting your own local politicians, and only use them for BTA-led lobbying and for no other purpose.
  2. “Your own local politicians” refers to those politicians elected to serve the area in which your home address falls. Please do not use our facilities to contact politicians elected to serve the area in which your work address falls.
  3. Please use your own words when contacting a politician using our online facilities. We can provide guidelines for you on a particular topic, but if you express them in words of your own choosing the impact is much the greater.
  4. Courtesy is essential when addressing politicians. A calm and professional approach is core to our public image and to our success.
  5. Please do not “over-lobby.” Multiple messages on the same subject from the same person only lose impact for others. Single messages from many different people obtain the greatest impact. At most, contact any given politician no more than once per month, unless the politician has expressly invited correspondence.
  6. For the most part, please stick to responding to BTA Lobbying Alerts, and respond to them within the date specified in the alert.

Thank you for reading these guidelines, and thank you above all for the crucial part you are playing in creating the political conditions for change for patients with brain tumours!

Back to BTA Lobbying Resources Page

January 4, 2010   Posted in: Uncategorized  

Will You Rise to the Charity Challenge?

Sky Diving is just one of many challenges available

Sky Diving is just one of many challenges available

Brain Tumour Action and Charity Challenge have got together to offer you the chance to enjoy life-changing experiences in some of the world’s most incredible places – and to help in the fight against brain tumours at the same time.

Climb Kilimanjaro and help the fight against brain tumours

Climb Kilimanjaro and help the fight against brain tumours

Charity Challenge are the UK’s top challenge-creating companies, and organised the very successful Comic Relief celebrity Kilimanjaro climb for Gary Barlow, Cheryl Cole, Kimberley Walsh, Ronan Keating, Chris Moyles, Denise Van Outen, Alesha Dixon, Ben Shephard and Fearne Cotton which raised over £3.35million.

The 3 Peaks Challenge - a favourite with BTA fundraisers

The 3 Peaks Challenge - a favourite with BTA fundraisers

Getting a challenge together for yourself is simple. Click here to download our Charity Challenge Brochure. Choose a challenge from the brochure. Then fill in the online form below -  we’ll reply with full details. Raise your funds, and off you go, knowing that you are in safe hands and that everything is professionally taken care of.

There are Challenges for just about everyone. And, if your time is short, you don’t have to travel: the Three Peaks Challenge is a popular choice for Brain Tumour Action fundraisers – or perhaps you’d prefer to Skydive!

And it’s not all just about cycling, hiking and climbing. You can change the lives of patients with brain tumours by helping other people change their lives for the better too in the South African Community Challenge.

The South African Community Challenge - Making A Difference to Make A Difference

The South African Community Challenge - Making A Difference to Make A Difference

If you’ve never fundraised before, this is a great way to start – with help from Brain Tumour Action and Charity Challenge, you’ll have the resources you need to succeed. And in years to come, when you look back on your challenge, you’ll know that it made a difference in one of the hardest health battles of our time: the search for a cure for brain tumours.

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November 30, 2009   Posted in: Uncategorized  

Lobbying Resources for our Advocates

IMPORTANT: Please use these online facilities in accordance with BTA’s lobbying guidelines. If these useful facilities are abused in any way, we will lose the right to use them.

Click here to read BTA’s Lobbying Guidelines

Read a list of subjects agreed with Brain Tumour Research UK for BTA Political Lobbying

Information and Contact Details for both Scottish and UK Parliaments

TheyWorkForYou.com

Get in touch with your local politicians

Contact Your Local Politicians
Enter your Postcode below:

November 23, 2009   Posted in: Uncategorized  

Helpline and Counselling

Brain Tumour Action runs a Helpline, open twenty four hours a day. The number is: 0131 466 3116. This is manned by a trained counsellor.  All calls will be answered as a matter of  priority and anything you say in conversation on the Helpline is completely confidential.

If you would like face-to- face counselling  we will be able to advise you on how to obtain this.

One-to-one Counselling

Lorraine Mackenzie, a long-time member (and former Chair) of BTA , offers one to one Counselling as well as Reiki throughout Central Scotland.

Lorraine holds a Post-Graduate Diploma in Person-Centred Counselling and is a member of the British Association of Counselling and Psychotherapy; in addition, she also has her 2nd degree in Reiki.

She is experienced in working with clients with a variety of issues (bereavement, trauma, abuse, bullying, relationships) and conditions (including mental and physical health issues / diagnoses).

Contact her on 0775 685 3638 and/or lorraine@lmtherapies.co.uk . Y ou can find further details at  www.lmtherapies.co.uk.

November 23, 2009   Posted in: Uncategorized  

Education

Brain Tumour Action is dedicated to the spread of knowledge about brain tumours throughout the UK. We are here to help, and will provide speakers for events in Scotland, information booklets and leaflets anywhere, and will provide advice to those training staff who will come into contact with patients with brain tumours.

If you would like more information, call on 0131 466 3116 or use the contact form below:

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November 23, 2009   Posted in: Uncategorized  


  • New Wholistic Support Website

    Katie Sheen from the Astrofund has created a new resource to give wholistic support. It can be found here: www.soulnutrition.org A free trial is available and Katie would welcome your comments and feedback. Part of the profits from soulnutrition will go to support research into low grade gliomas.

  • Cancer Support Scotland – Formerly Tak Tent

    The Calman Centre is being refurbished at the moment and will be opened this summer. We are currently running our services in the old renal building on the Gartnavel grounds, which include our complementary services and talking therapy. Our new website (www.cancersupportscotland.org) has just been launched and we just want everyone to know we are here!

  • Reduce your Electricity Bills

    Transition Edinburgh South has an Action community volunteer project that aims to help people reduce their fuel bills and make their houses warmer and more comfortable to live in. They have a team of volunteers who can help people in the south Edinburgh area to save energy, access grants and reduced energy tariffs which they may be eligible for.

    They are particularly keen to help people who may be on benefits due to serious illness.If you think they can help you call 0131-650-4064 and ask for Caroline

  • Sponsored Link

    Get charity insurance from Endsleigh.co.uk

  • New conTAK Center in Glasgow

    conTAK Scotland has opened its Drop-In Centre - the first of its kind - in the centre of Glasgow! For all young adults living with cancer, family and friends, the drop in centre offers support and friendship, regular get-togethers and the chance to meet a great bunch of folk who really do 'know how you feel’.
    You'll find us at Suite 320, 4th Floor, Central Chambers, 11 Bothwell Street, GLASGOW G2 or you can give us a call first on 0141 227 6764, or email contakscotland@gmail.com

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