It would be good to have a list of options here.

The first meeting will be held on the 6th of September, 6-8pm.

Contact Donna Sherridan on 01772 793344 or 07508375679 for further meeting times.

The group meets in Vine House, 22 Cromwell Road, Ribbleton, Preston, PR2 6YB

Josie Phillips with her husband Roger are sailing their Contessa32, Nordlys , around Britain to raise funds and awareness for Brain Tumour charities and to complete a great personal challenge.

Josie was diagnosed with a low grade brain tumour in 2004 but in 2008 after three operations they discovered it had progressed to grade 4 (malignant). Since then Josie has been treated with radiotherapy and chemotherapy as well as developing an infection which led to yet another operation and she is now without a section of skull.

The length of Josie’s life is rather uncertain but one thing is for sure – She is determined to live it and enjoy it.

In 2007, Brain tumours killed 3611 people, many of whom were children, or young adults like Josie. When compared with other cancers such as leukaemia and breast cancer, funds for brain tumour research are seriously lacking. In the UK more children and people under the age of 40 die of a brain tumour than any other cancer – yet brain tumour research is woefully under-funded.

Very little is known about the cause of primary brain tumours and there is no cure. More funding is needed to enable research to help find better treatments for this horrible disease.

Average survival for people with brain cancer like Jose’s is between just 9 months and 2 years.

With a passion for living made stronger with each challenge and adventure, Josie intends to beat the statistics and keep living.

In her own words “Sailing Round Britain is a great personal challenge for me and will never take me far from medical help should I need it. It will also give us the opportunity to see lots of our friends along the way and hopefully make new ones too!”

You can learn more Josie and Roger and follow them round the UK at www.contessa32.co.uk.

After a brief introduction from BTA there were talks on a range of subjects including ‘Distress and Depression in Glioma Patients’ by Dr. Alasdair Rooney and ‘Managing Seizures’ by Yvonne Leavy. Dr. Julie Read talked about the problems of diagnosis and recognition of symptoms which, because she was speaking both as GP and Carer, gave her observations an extra authority. Prof. Ian Whittle discussed different surgical interventions and Dr. Zoe Morris gave a detailed analysis of neuro-oncology imaging. Andrew Anderson from the Maggie’s Centre illustrated “Difficult Situations and Questions” while Dr. Simon Kerrigan considered cognition in patients with brain tumours.

It is hoped that this worthwhile event can be repeated in other parts of the UK since this is a disease that requires expert knowledge at all levels, from diagnosis to treatment and care. Brain Tumour Action is delighted to be able to assist in this practical way.

Kane Gorny was diagnosed with a brain tumour last year and was admitted to St. George’s Hospital for further treatment when the drugs he had to take weakened his hip bone.

Two days after the hip operation, having been denied essential medication, he became severely dehydrated but his requests for water were refused. Bedridden and confused, he still managed to ring the police for help.

Very sadly it was too late. His mother said: “I told three nurses there was something wrong with my son and they said “he’s fine” and walked off.”

Kane died shortly afterwards.

St. George’s Hospital has apologised and says it has introduced new procedures to ensure such a failure can not happen again.

However the MetropolitanPolice have been requested to investiage his death after the case was referred by Westminster Coroner’s Court.

Taken from Mail Online – The Daily Mail, March,2010.

Coffee and bacon roll
18 Holes Shotgun Start
2 course meal
Prizes and raffle
£300 per team of 4 players
For an application form please call
0131 466-3116 and leave your name and address.

OR CLICK HERE TO DOWNLOAD A FORM FROM THIS WEBSITE

You can download the latest issues from this page. Just click on the images to obtain your copy. The downloadable issues require Adobe Acrobat Reader or Foxit Reader on your computer to open them.

KITE March 2010

KITE October 2009

KITE June 2009

March is Brain Tumours Awareness Month, and BTA is getting off to a grand start with our Fashion Show at Leighton Buzzard Golf Club on the evening of Friday 5th March. Organized by BTA’s Home Counties Representative Nicole Witts and her team of volunteers, the show features fashion from Daisie Lane, make-up demonstrations from Clarins, styling by Sculptors and a display of lingerie!

The occasion sold out within days, and is being supported by Andrew Selous MP, Leighton Buzzard TV, Essentials Beauty, St Jude’s Clinic, Lloyds Skincare and Makeup and guests will be entertained by 2008 X Factor contestants Ladies With Soul.

Thanks go to Michelle Cottingham, everyone at Leighton Buzzard Golf Club, and Lincoln Design and Print.

Time:

Meetings are held on the first Tuesday of every other month 1.30-3.00pm.

Contact:

Contact Anne Coles on 0845 450 1039, or Jason Bowie on 01202 263072

Location:

The Springfield Hotel, Grange Road Wareham BH20 5AL