Support Groups

Location

Support Group

Contact Information

Aberdeen

Open to those diagnosed with a brain tumour and their families/friends.

Located at CLAN House,

Caroline Place,

Aberdeen, AB25 2TH.

Clan House 01224 647 000

[email protected]

or visit the website at

www.clanhouse.org

Belfast

Monthly on 2nd Wednesday of each month except in July, August and December at 7.30pm

Run by Brainwaves

0289 337 2505

Bristol

Third Thursday of the month at 7.30-9pm(except August)

Run by Hammer Out

Anne Coles 01454 414355 or Toni Lawton, Neuro-Oncology Nurse on 01179 753723

St Peters Hospice,
Brentry,
Bristol

[email protected]

Cambridge

Last Tuesday of the month

The Mary Wallace Centre

7 Redcross Lane,

Cambridge

marywallacecentre.org.uk

01223 596 379

Cambridge

Meningioma Support.

Meningioma UK,

4, Prestwoodgate,

Sandridge Road, Saint Albans

Herts. AL1 4AE

[email protected]

01787 374084

Carlisle

Meets at 1.15pm

Brain Tumour Support Group for Cumbria

Sue Prudham on 01228 561257

Harraby Community Centre,

Edgehill Road
Carlisle

(Jnct 42 M6)

Cheltenham

The fourth Thursday every month except August, 7.30-9.00pm.

Run by Hammer Out

Anne Coles 01454 414355 or Toni Lawton CNS. 01179 753723.

[email protected]

Sue Ryder Hospice, Leckhampton, Cheltenham

Cork

Monthly

Irish Cancer Society on 1800 200 700 (within the Republic) or 353 2310 500

[email protected]

Cork University Hospital
Wilton
Cork

Dublin

Monthly on 2nd Wednesday at 7.30pm

Irish Cancer Society on 1800 200 700

Education Centre
St Lukes Hospital
Highfield Road
Dublin

Edinburgh

Monthly, on the first Tuesday at 7pm.

No meetings in January or July

Run by Brain Tumour Action

Alice MacGregor on 0131 334 3609

Located at Maggie's Centre,

Western General Hopital,

Edinburgh

Exeter

The first Friday of the month except August, 2.00-3.30pm.

Run by Hammer Out

Anne Coles 01454 414355 or Robert Oliver. Force Centre 01392 406151

[email protected]

Force Cancer Charity Centre, Corner House, Barrack Road, Exeter.

Fife

First Tuesday of the month, 7-9pm

Maggie's Centre, Victoria Hospital Kirkcaldy

01592 647 997

Glasgow

Monthly, on the second Monday at 7.30pm

Margaret Williams on 0141 959 9871

Located at Princes Royal Trust,

West Glasgow Carers' Centre,

1561 Great Western Road

Glasgow, G13 1HN.

Hartley and Wintney

Every other Thursday, 11am-2pm

Run by Brain Tumour UK on 0845 4500 386

Located at Victoria Hall,

West Green Road,

Hampshire, RG27 8RE

Haywards Heath,
Sussex

Monthly on last Thursday from 7pm to 8:30pm at Clair Hall

Open to brain tumour patients and their families

Run by Sussex Brain Tumour Support Group

Mike Brookes on 01403 263719 after 7pm and at weekends

13 Heathway,

Horsham, West Sussex,

RH12 5XB

Leeds

Monthly on first Tuesday, 6pm-7.30pm

Samantha Davies,

Neuro-Oncology Nurse Specialist,

Westmoreland Unit,

St. James Hospital,

0113 267 3411

Liverpool

Meetings take place quarterly at the Glaxo Centre, Norton Street, Liverpool, L3 8LR

Dates vary, but usually held between 7pm-9pm

Patient Advice and Liaison Service (PALS) The Walton Centre, Liverpool.

PALS,

The Walton Centre for Neurology and Neurosurgery NHS Trust,

Lower Lane, Fazakerly,

Liverpool, L9J 7LJ

Tony Murphy on 0151 529 6100 [email protected]

London

“Brainteasers” for those, aged 16 to 45ish, diagnosed with a brain tumour. First Monday of the month from 2pm to 4pm

Dimbleby Cancer Centre on 020 7188 5918 [email protected]

St Thomas Hospital
Dimbleby Cancer Centre
2nd Floor, Lambeth Wing

Lambeth Palace Road
London, SE1 7EH

London

For patients with low-grade glioma and their carers; welcomes all affected by glioma

First Tuesday of every month, 6pm-8pm

Emma Townsley, Macmillan Clinical Nurse Specialist, The National Hospital

0845 155 5000 ext. 724122 [email protected]

Sarah Levy, Macmillan Clinical Nurse Specialist, The Royal Free Hospital

020 7794 0500 ext. 5035 [email protected]

The Resource Room,

Bloomsbury Healthcare Library

Bonham Carter House,

52 Gower Street, London

(nearest tube is Goodge St.)

Merseyside and Cheshire

Meets regularly at Neurosupport

Maureen Kelly on 0151 298 2999

at Neurosupport,

Norton Street,

Liverpool,

L3 8LR

[email protected]

Middlesborough

Monthly, on the first Tuesday, 6pm-7.30pm

Run by Brain Tumour Action,

Gill Hendry on 01642 854 347.

Located at Holistic Cancer Centre,

James Cook Hospital

Newcastle

Last Monday of the month, 2pm-4pm

Lynn Parkes, Macmillan Neuro-oncology CNS, 0191 233 6161 ext. 21060

Located at the Conference Room

Regional Neurosciences Centre,

Newcastle General Hospital

Westgate Road, NE4 6BE

Newcastle

Meningioma Group

Claire Bellamy,

Newcastle General Hospital

Oxford

For children with a brain or spinal tumour and their families.

Run by Oscar - www.support-oscar.org email [email protected] or 01235 816310

Oscar
Radcliffe Infirmary
Woodstock Road

Oxford
OX2 6HE

Southampton

Meetings held on an irregular Saturday each month

Run by the British Acoustic Neuroma Association

Jenny Benger on 023 92 581845 17 Palmerston Way, Gosport, Hampshire, PO12 2LY

[email protected]

Located at the Queen Alexandra Hospital, Cosham, Portsmouth

Southampton

The second Wednesday of the month except August, 2.00-3.30pm.

Run by Hammer Out

Anne Coles 01454 414355 or the Centre Manager. 02380 796503

[email protected]

The Macmillan Centre, Southampton General Hospital, Southampton

Southampton

Not yet up and running

Run by Brain Tumour UK

Maria Christidou on 07876 505319

[email protected]

37 Grosvenor Place

Burleigh Gardens

Woking, Surrey,

GU21 5DY

Sutton, Surrey

Monthly on 3rd Thursday from 7.30pm to 9pm.

Two support groups: one for carers and one for those diagnosed with a brain tumour

For the carers group, contact Douglas Guerrero on 02086 613036

For the Patient group, contact Helen White on 02086 613038

Royal Marsden NHS Trust
Downs Road
Sutton
Surrey

Carers group: OPD waiting area

Patients group: Richard Wells Rehabilitation Centre

Various UK Locations

Pituitary tumours

Over 40 support groups across the UK run by the Pituitary Foundation

Contact the Pituitary Foundation by email, post or telephone. Details below:

[email protected]

The Pituitary Foundation
PO Box 1944,
Bristol BS99 2UB

0870 774 3355

Rosemary Wormington 0780 4820351 or email [email protected]

Worcester

www.wbtsg.org

Last Updated ( Friday, 12 December 2008 17:47 )
 

Home

Charity Number: SC 021490

Lack of BT Research in the Media

The inequalities in research funding regarding brain tumours is gradually being more widely acknowledged:

BBC South Today

BBC London

BBC East Midlands (starts 15 minutes in)

Committee member Julie Read in Scotland on Sunday

Committee member Joannie McCutcheon in the Edinburgh Evening News

 


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New Support Groups

Can't Find A Group Near You?

If you cannot see a group near you and are interested in starting one up - or if you have come together informally with some local people in the same situation- we can help you financially to establish a group in a more formal setting. Often we can liaise with organisations near you to provide a place to meet, as well as funds to start you off for transport, refreshments and information. Please do get in touch via email or phone; we would really like to hear from you and offer you our support.